Storyteller | Teacher | Activist
An entire life can be a story which, correctly told, can change hearts and minds.
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Teaching means sharing these stories and the lessons gleaned from them.
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To tell stories of empowerment and teach about them eventually makes one fight for those who can't do these things.
Pablo's Lifelong Work
Storytelling
Writing novels and short stories. Crafting nationally-shared opinion pieces for Colombian newspapers. Being recognized for an Oxford University-winning essay. Working in collaboration with the Gold Museum to create a LEGO piece. Pablo is a natural storyteller, ready to create the next new tale in whatever format it may be.
Advocacy
Pablo was never meant to live past three, and yet has used all 28 years of his life fighting the good fight for the rare disease community in Colombia. Making use of a popular YouTube channel, speaking at book fairs and presenting at the National Academy of Medicine, all got Pablo recognition as one of Colombia's Top 20 Leaders of 2018.
Services
Public Speaking Lecturer
Having taught public speaking courses and coached individuals for over ten years now I can help instruct on the production of oral pieces and delivery of them.
Motivational Speaker
I have been featured in many events and platforms to speak of my rare disease experience, the fight with it, and my accomplishments. I'd be happy to inspire others with my words and testimony.
Rare Disease Activist
First-hand experience as a rare disease patient, alongside with the American and Colombian rare disease communities, means I have a solid idea on what patients, caregivers, and physicians need. I can speak on these topic to lawmakers, doctors, families, and any other affected party.
Creative Writer
Whether it be fiction pieces or non-fiction op-eds, I can produce written works for you or teach how to do so as well.
Who?
Born with a rare disease (APS Type 1) that wasn't supposed to let him live past three, the now 28-year-old Pablo Ramirez Uribe lives his life as a published storyteller and writer, internationally-renowned activist, and educator who has taught on various platforms and in different countries.
Pablo has written three novels, nationally-shared articles for Colombian newspapers, as well as an award-winning essay in Oxford University on the topic 'What Is Genius?'. He's taught English in the United States and oratorical courses in Colombia and South Korea, as well as expanding into podcasting to do so remotely. Finally, thanks to his YouTube channel Pablo El Raro and his use of social media for rare disease advocacy Pablo was named one of Colombia's Top 20 Leaders of 2018.
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Pablo now devotes himself to his writing and content creation as well as his advocacy efforts for Colombian rare disease communities.
